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Case study: gaslit for mentioning smouldering MS
Listen now (13 mins) | My neurologist refuses to do additional tests to diagnose smouldering MS. Is there anything I can do to stop smouldering MS?
Mar 8, 2023
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Gavin Giovannoni
19
33
Q&A 22 - smouldering MS on ocrelizumab
Listen now (16 mins) | I have put this gradual worsening down to ageing. Could it be smouldering MS? Is there anything that can be done about…
Feb 19, 2024
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Gavin Giovannoni
16
21
Smouldering MS - a new trial
Listen now (10 mins) | We need your help and feedback on a new trial design for smouldering MS. Would you be interested in volunteering to participate?
Feb 16, 2023
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Gavin Giovannoni
28
53
1
Case study: managing smouldering MS
Would switching from fingolimod to siponimod make any difference? What about all the other potential treatments for smouldering MS? What would you…
Aug 30, 2021
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Gavin Giovannoni
11
7
Smouldering MS: the real MS becomes a tractable problem
Tolebrutinib, a second-generation BTK inhibitor, is the first to show a reduction in disability accumulation in non-relapsing secondary progressive MS…
Sep 2, 2024
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Gavin Giovannoni
29
83
Research: big data and smouldering MS
Listen now (9 mins) | Big data confirms smouldering MS is the dominant driver of disability worsening in MS and that age and loss of reserve is a major…
Feb 3, 2022
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Gavin Giovannoni
22
34
9:00
Q&A 65 - cladribine and smouldering MS
Cladribine impacts smouldering MS biology and is the main reason we are testing cladribine in more advanced MS to see its effect on upper limb function.
Dec 29, 2024
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Gavin Giovannoni
19
32
2
MS-Selfie Q&A 12
Do all people with MS have smouldering disease? Do anti-CD20 therapies stop smouldering MS? I have smouldering MS on ocrelizumab; what should I do?
Nov 25, 2023
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Gavin Giovannoni
18
33
1
Q&A 59: Will tolebrutinib change the willingness of neurologists to diagnose smouldering MS?
He told me to forget about smouldering MS and that I also don’t have secondary progressive MS. He told me to carry on as best I can. Am I going mad?
Nov 27, 2024
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Gavin Giovannoni
29
32
2
Q&A 134: Spinal MRI monitoring - to do it or not
Listen now (13 mins) | Why don’t I have routine spinal cord monitoring as part of my annual MS assessments? Do standard MRIs detect smouldering lesions…
Dec 30, 2025
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Gavin Giovannoni
17
36
Are you aware of SAW? Would you want to know if you had smouldering MS?
I am acutely aware of how often you, as people with MS or a spouse, partner or family member of someone with MS, have been gaslit when it comes to…
Nov 2, 2025
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Gavin Giovannoni
24
69
2
Q&A 45 - Not to treat MS and smouldering MS
Do you agree with the decision of the two British Olympians and track stars, Lina and Laviai Nielsen, not to take disease-modifying therapies for their…
Aug 14, 2024
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Gavin Giovannoni
10
40
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