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Q&A 43: Newly diagnosed PPMS: AHSCT or not?
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Q&A 43: Newly diagnosed PPMS: AHSCT or not?

If you had PPMS would you sink your life savings into pursuing AHSCT route ASAP or prioritise living your best life while you have the luxury of mobility?

Q: What would you advise someone recently diagnosed with PPMS?

I saw you previously stated that if you were diagnosed with MS, you would get HSCT. Would that be true if you developed progressing symptoms? Would you sink your life savings into pursuing AHSCT route ASAP or prioritise living your best life while you have the luxury of mobility?

The prospect of debt, the risks of the treatment and recovery and then seeing no net gain in terms of halting the progression of disability versus taking the holiday of a lifetime and hoping for a breakthrough in remyelination is the gamble I’m facing.

I would be grateful for your thoughts.  

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Prof G’s answer

Q: What would you advise someone recently diagnosed with PPMS?

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