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Jim_ie's avatar

Not sure it is up to a particular health care pro in general. Three years ago before my recent series of relapse that resulted in a 18 month rollercoaster to get a diagnosis I had a vo2 max of 66 as a 45 year old male and resting heart of 42. As I started my first relapse that effected my physical health presenting to three different gps that my health wasn’t right and detailed evidence as a keen cyclist able to demonstrate issues in my right ankle through the pedal stroke they just thought I was crazy! Clonus identified on later inspection. And I was over reacting and obsessive about my body. Was an extremely keen cyclist. Now vo2 of 33 and unable to ride a bicycle and limited to walking about 1 mile. To know my heart rate over the years was described as neurotic by a thoracic consultant - just go out on your bike she said unbeknown to her or I that I was having my 3rd relapse 15 months. So to sum up, HCP need to recognise the value of wearable tech and not dismiss it! As if the largest company in the world would equip their Watch with a gimmick hr and Sat oxygen monitors! I demanded a referral to a neurologist privately from the 4 th gp as previously the rheumatologist I was recommended, agreed with the 3rd doctor that it was in my head! Which was in right ball park just needed to toss the net wider and just go with the central nervous system catch all. Sorry rant over. I guess I self managed my health and when I needed a professional was let down a bit. Even when going private. 😞

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Helen's avatar

A really interesting read. My bowel is a constant Yo-yo of constipation and frequent pooping. I turned down the latest migraine injectables as it can cause constipation and a few folk were hospitalised in the trials. A Dr who called me to discuss my reasons did not really get it. How miserable bowel dysfunction is.

I have a healthy diet and fast for 15 hours most nights. I get the exercise I can but if I miss the window of opportunity earlier in the day I have no energy.

I’ve often wondered about child hood trauma/ abuse flooding the developing brain with cortisol’s and setting some of us up for diseases such as MS. I know many MSers won’t have had these experiences and it’s a very sensitive subject, but being in fight/ flight or freeze on a regular basis has to be bad for our physical developing bodies.

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