Wow! Really helpful format and information. This is much simpler than trying to make notes from various pharmaceutical booklets in order to compare efficacy. This is straightforward. I appreciate that there are no ads or photos of people on a picnic or “living their best life”🙂
Thank you for taking the time to do this for our community. Very helpful.
Wow, these are amazing. I was surprised to see the differences in effectiveness and your ratings between Ocrevus and Kesimpta when my neurologist said they were the exact same drug. Is it ok to post a link to these in the MS groups?
Brilliant idea. Informative, simple to understand, full of information and easy to refer and compare. Also, they put the person with MS much more in control and more able to question/ debate with a neurologist.
These are brilliant and I really think the change aid understanding and decision making. These would also reduce they addition research required. Awesome all round
I really think these are fantastic, I think the colour scheme and visuals work really well, very nice to look at, and probably better for patients with visual impairment than the older version.
I really like the overall score being based on efficacy, and separating the effectiveness, side effects, and impacts allows for a clearer thought process when selecting a drug. QR codes are great. A huge well done to all involved, thanks you all for your efforts!
A few points of constructive feedback: 1) I think it's misleading to put a 5 for cancer risk instead of "NA" or "unknown", especially because readers can't tell whether it's a "5/10" 5 or a "limited info" 5. 2) I think it's confusing to have "effectiveness" and then to also define "MS-Selfie Rating" as effectiveness. Either they're the same and it's redundant, or they're different and the difference needs to be made clearer. 3) This is a bit nitpicky, but if you imagine a world where these become very popular, it might make sense to move the licensing disclaimer to the cards themselves, that is, have the cards say "licensed (UK)" so international versions don't require you to find the explainer card. In that same vein, putting a year next to the version in the footnote might be helpful. It will be an impossible task to stay up to date on paper cards, but you can mitigated it by making it easy to tell how recent they are.
These are by far the best thing I have seen in all the years of having MS. Clear, concise and easy to understand information. Thank you so much for all your hard work and dedication.
These are great! I remember choosing a DMT by creating a sort of spreadsheet with a lot of these variables on it. Then I had to trawl through pubmed for papers and extract the information. A very imperfect process, as someone with minimal to no scientific/medical knowledge. Would that this had existed then ... though I am still slightly baffled as to why people with MS have to choose their own treatment when anyone living with virtually anything else is in the hands of their doctor as far as treatment goes.
This version of the cards is super cool! Maybe it would be good to put them somewhere in ms selfie website so everyone can check them any time. Thank you prof G.
I really like these cards, much better than previous version and very helpful when it comes to making decision! Tho I wouln't give DMDs different effectivness score just base on few % difference based on comparison of different trials (Ocrelizumab vs Ofatumumab).
Wow! Really helpful format and information. This is much simpler than trying to make notes from various pharmaceutical booklets in order to compare efficacy. This is straightforward. I appreciate that there are no ads or photos of people on a picnic or “living their best life”🙂
Thank you for taking the time to do this for our community. Very helpful.
Wow, these are amazing. I was surprised to see the differences in effectiveness and your ratings between Ocrevus and Kesimpta when my neurologist said they were the exact same drug. Is it ok to post a link to these in the MS groups?
Brilliant idea. Informative, simple to understand, full of information and easy to refer and compare. Also, they put the person with MS much more in control and more able to question/ debate with a neurologist.
These are brilliant and I really think the change aid understanding and decision making. These would also reduce they addition research required. Awesome all round
Love the ease of comparison provided by the cards.
Yes, I will using them to help pick my next DMT after chemo.
I really think these are fantastic, I think the colour scheme and visuals work really well, very nice to look at, and probably better for patients with visual impairment than the older version.
I really like the overall score being based on efficacy, and separating the effectiveness, side effects, and impacts allows for a clearer thought process when selecting a drug. QR codes are great. A huge well done to all involved, thanks you all for your efforts!
Absolute gold dust. Wish they’d been available when I was first diagnosed in 2020. Thank you Prof G.
Amazing work! My friends sure seemed freaked out by the cancer rating 🙃
So do you win the round of top trumps for cancer risk with the highest or lowest risk?
These are beautiful and easy to read!
A few points of constructive feedback: 1) I think it's misleading to put a 5 for cancer risk instead of "NA" or "unknown", especially because readers can't tell whether it's a "5/10" 5 or a "limited info" 5. 2) I think it's confusing to have "effectiveness" and then to also define "MS-Selfie Rating" as effectiveness. Either they're the same and it's redundant, or they're different and the difference needs to be made clearer. 3) This is a bit nitpicky, but if you imagine a world where these become very popular, it might make sense to move the licensing disclaimer to the cards themselves, that is, have the cards say "licensed (UK)" so international versions don't require you to find the explainer card. In that same vein, putting a year next to the version in the footnote might be helpful. It will be an impossible task to stay up to date on paper cards, but you can mitigated it by making it easy to tell how recent they are.
These are by far the best thing I have seen in all the years of having MS. Clear, concise and easy to understand information. Thank you so much for all your hard work and dedication.
These are great! I remember choosing a DMT by creating a sort of spreadsheet with a lot of these variables on it. Then I had to trawl through pubmed for papers and extract the information. A very imperfect process, as someone with minimal to no scientific/medical knowledge. Would that this had existed then ... though I am still slightly baffled as to why people with MS have to choose their own treatment when anyone living with virtually anything else is in the hands of their doctor as far as treatment goes.
Great formatting; presents a lot of complex info in a user-friendly style 👍🏻
This version of the cards is super cool! Maybe it would be good to put them somewhere in ms selfie website so everyone can check them any time. Thank you prof G.
I really like these cards, much better than previous version and very helpful when it comes to making decision! Tho I wouln't give DMDs different effectivness score just base on few % difference based on comparison of different trials (Ocrelizumab vs Ofatumumab).