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Lynn's avatar

I’ve found this newsletter really depressing as I’m one of those people who wasn’t prescribed a DMT for several years. I wasn’t having relapses, but I did have optic neuritis on one occasion. (at 40) So now here I am at 64 - I’ve been told that there’s no point in taking Tecfidera anymore- my latest MRI shows that the ms is inactive (doesn’t feel like that!) So no other option but to wait until I shuffle off this mortal coil! I’m usually a very optimistic person but it’s hard to remain so, when your options are so limited. 😢

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Bluebird's avatar

I am in a similar situation to Kit, previous poster, except that I have requested siponomid, have had mri and am awaiting appointment. Had 2 relapses in 20s, nothing for 30 years but SPMS diagnosed in 50s as slowly deteriorating. What more can people in our situation do (also volunteer for trials, most recently Sizomus)? Feel I missed the boat in terms of DMTs because of timing!

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