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Caroline Mawer's avatar

lve had double vision - told i had some nystagmus. i have multiple eye diagnoses - on top of bilateral optic neuritis. i found trevor wickens ms gym eye exercises really helpful - very quick results - use them to top up if it comes back. just an easy idea!

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Anna's avatar

I have an off topic question for you Prof -

Is it right that the dental reference system doesnt take into consideration how dental how infections affect the average pwms? It is right that they should not take into consideration that we cannot tolerate a dental infection even before there is " at least visible facial swelling" because of the neurological and relapse trigger effect?

To elaborate: i have quite bad neuro damage even though i am stable on tysabri. If i get an elevated temperature - anything past 37 degrees say due to infection, or get any slight infection/virus such as a tooth infection i become virtually unable to walk and i get bppv. I become unbearingly cognitively impaired.

How do I explain to other health professionals such as my dentist/nhs maxilo surgery provider that they can't treat me like a normal person? That if they do i literally wont be able to walk/talk/sleep/think?

How do you explain to people that your brain starts metaphorically boiling and your brain operating system goes blue screen?

Do they not have a higher duty of care for patients with chronic idleness?

What they call a non emergency- i.e. a small infection- is a very big deal to pwms.

I've been told (shouted at) today by the nhs surgery I was referred to by my dentist that basically im a queue jumping hypocondriac problem patient when i tried to ask the manager to please highly consider me on their cancellation list.

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