Your comments prove the point I make that the majority of people who develop MS were not obese in childhood and adolescence. I think the science behind how obesity increases the risk of developing MS is more important than the observation itself. And I don't believe we have the science pinned down. All the current explanations are rather woolly.
I was told that because I was still on tapentedol still for MS from Helmut, that, that’s why breaking my pelvis in the car crash hurt so much and couldn’t be stopped with ketamine and morphine etc.
“Your body becomes so much more sensitive to pain when you don’t have an opiod in there”.
However a post was done on the positives of opioids on ms but really is it just increasing the pain of people with ms?
Heaps with MS are prescribed tapentedol. Is this actually really bad for us?
Smoking is also highlighted as a risk factor for getting MS. In the early 1970s c.45% of adults in the U.K. smoked and in the early 2020s this had reduced to c.15%. Yet MS incidence keeps rising! Too many researchers with too much time on their hands. Need to focus on EBV, genes and gender difference. EBV is the only risk factor that can be changed via a vaccine or anti-viral. The wait goes on.
I despair at the amount of funding going into soft projects, exploring peoples views and attitudes on different topics, just reading the MS society newsletter is depressing. I think I have queried to much to be allowed onto any decision making committees now!
There wasn’t the money for snacks. 3 meals a day and sweets now and then. Spent as much time outside as possible. Walked at least a mile to school and back from 5. No opportunity to be chubby. I was a fit and sporty person until late 40s.
I see most of us identify as having been skinny - but we are a small subset of people with MS, ie educated enough to read and understand at least some of what you write and motivated enough to seek out information about improving our health. Might these characteristics indicate that we also had childhood circumstances and environments which mitigated against poor diet and obesity? I'm talking in very broad brush strokes here but I'd suggest we're not a reliable sample set from which to draw meaningful conclusions.
🙋♀️I must be the only (very) chubby child here, until mid teens when I became anorexic, and have remained on the lower end of my ideal weight throughout adulthood.
In terms of MS, the benefits intermittent fasting have been mentioned to me by a HCP. I think when talking about diet/fasting it should be pointed out that it is unsuitable for anyone with an history of an eating disorder, I rarely hear that mentioned.
I was obese as a child. Although looking at photos, in the 1960’s,compared to kids now, I looked less fat. I started smoking cigarettes and when I had EBV Epstein Barr Virus, then called Mononucleosis “kissing disease”. 🦠 Our life pathways are complicated. Memory not so perfect, actions not always enviable. What am I hiding? I was prescribed ozempic for type 2 diabetes. I’ve lost 70 pounds. I’ve discovered, that pre ozempic
I’m never hungry and never full. My sister told Me Mom used to say that. I attribute that to a survival technique from the ancestry:
old countries-Bohemia and Sweden. Thinking out loud.
I wasn’t fat. My BMI was normal. But I did no sports whatsoever (I was always the clumsy one). I had sweets now and then. My diet, although not “clean”, was certainly way better than standard american diet. My mom cooked every day from scratch. Occasionally we would have pizza takeaway. That was after 1996 (after the war). And during the war, well, I am glad that I was young and I don’t remember much of it
Hi Belma, always good to see you…how are you? For time being no more urological testing! Went on some med, vibegron, but it does cause retention. Went back on low dose of methanamine. Fingers crossed, getting more sleep…💕
Hello my dear friend! I have UTI every 3-4 months 😞 dr says now it’s self cathing that’s causing them. I will probably be taking low dose long term antibiotics now, after I finish round of Cefirexime. The good news is, I went to dr in Croatia, and have been approved “interstim” procedure (sacral neuromodululator, google it). It should help with frequency and retention. I’ll probably wait 6 months until the procedure, the hospitals are overworked and understaffed…
I’m sorry you’re still getting them so often. I had one per month from the constant cathing caused by the Botox, now finally worn off. Yes, my uro mentioned the stimulator. He said it does not have an electrical charge, which is good, because that wouldn’t be tolerable (I won’t bore you). I will look it up! He also talked about tibial stimulation, but said it doesn’t last. Sleep is still choppy, even though I’m definitely getting more with this new drug. Understaffing is everywhere! If you must cancel anything, get ready to wait 4+ months! 😟Always sending you good thoughts!💞
LOL, now I see that I wrote I have UTIs every 3-4 months, and I SHOULD have written every 3-4 WEEKS. Blame it on brain fog. My uro only says Oh it's due to cathing, and no other suggestions. Tibial stimulation is not available in Bosnia (come to think of it, not much is available here). I will wait for the stimulator as long as it takes. I am glad that you're getting more sleep, I am like a zombie when I don't sleep. Take care :-*
Super skinny and strong kid of a PE teacher, doing different sports 7 days a week. Also outdoors much of the free time. However, all this stopped at pretty much 18 and did become overweight later in life.
Thinking further about this Professor G, do you think it could be narrowed down to different decades. So maybe us older MSers didn’t get so many calorific UPFs. Maybe it could be linked more to the amount of these foods. They started increasing in the 70s. I’m not a scientist but I do believe they are linked to disease. So born in early 60s as a child second hand smoke was the norm. Is there research into this and diseases like MS
I was not chubby at all as a child. However, the second i hit puberty i started getting tired really easily and i noticed iwas clumsy. As a result i was excused from pe and started wondering how the hell other kids can play sports. I went from normal to gaining weight and starting to look chubby during the summer from 13-14 yo, i got my period at 14. From there on i began to not be able to sit in tge sun anymore and sunbathe. When i was 17 i started to get really obese, i was 70kg, then 76 by 18. At 16,17 i went through a period of no being able to walk to school, my legs would simply start to lock when i had about 30cm until i reached school gates. I started to zone out when i was being spoken to by teachers- it was like i couldn't hear them. I never got the joke or the banter and i was constantly tired and struggled to keep up. I'd study hard only so that the next day I'd forgotten everything or i simply coudnt find tge words. At 18 i got chest numbness. I always just thought i was stupid lol. Fast forward to 32 i started to feel concussed and failed thge Rhomberg test in tge gps office. Fast forward to 34 i had my child and all hell broke loose wghen he was 1yo witg 6 or more relapses in a year.
Tl:dr - I really don't think its childrenhood obesity that causes ms - its ms that causes child obesity.
I could have been classed as 'chubby' because I was always small for my age; 4 foot, 11.5 inches.
As a baby, I was lactose-intolerant and had to be bottle-fed.
I was active at school playing hockey and running cross-country for my school. It was only as a young adult that tapered off.
After diagnosis, I dropped a stone and paid more attention to my diet, meditation, exercise, sleep hygiene, and general wellness as one would when diagnosed with anything medical.
Underweight as a child and adolescent. Did not have mono but possibly had asymptomatic EBV infection, never been tested. I did have chicken pox as a child and again at age 35. Diagnosed with MS at age 45. Makes me wonder if that triggered the autoimmune response
I had chicken pox at 29 which was NOT fun! Mum said "We showed you to every child who had chicken pox (as you did in the 60s / 70s) and you refused to catch it! Strangely I had it first, then my 3 year old and then my 10 month old: 3 days after her first bath since 8 weeks old (thank goodness she was no longer in treatment for dislocated hips)! Between us we wrote off about 6 weeks.
I never had chickenpox but I did have measles as a child. That was before the vaccines were available for that. Possibly, also, an a-symptomatic case of EBV as well. I have not been tested for that.
I was also a slim child / adolescent. However I wonder if people who were chubby children are not posting that fact among the many comments from thin children.
Good point. My sister who had MS was a prem baby in the 50s. She was short and hated gaining weight. She wasn’t obese but rounder than myself and other skinny sister. She was bulimic and anorexic from 14-20s. This did her a lot of harm. I wondered if it set her up for disease.
I was a healthy sized, v.active child and have always eaten lots of veg. Choosing to be vegetarian from 13ish.
I can't help thinking could it be more related to what we ate as children & that obese children just ate more of a partcular thing that maybe affected likelehood of getting MS.
Your comments prove the point I make that the majority of people who develop MS were not obese in childhood and adolescence. I think the science behind how obesity increases the risk of developing MS is more important than the observation itself. And I don't believe we have the science pinned down. All the current explanations are rather woolly.
A super sporty kid who became a PE teacher….. and still got ms…. and was also outside all the time in the UV light teaching…. and playing sport 🤷♀️
Gavin-
I was told that because I was still on tapentedol still for MS from Helmut, that, that’s why breaking my pelvis in the car crash hurt so much and couldn’t be stopped with ketamine and morphine etc.
“Your body becomes so much more sensitive to pain when you don’t have an opiod in there”.
However a post was done on the positives of opioids on ms but really is it just increasing the pain of people with ms?
Heaps with MS are prescribed tapentedol. Is this actually really bad for us?
Smoking is also highlighted as a risk factor for getting MS. In the early 1970s c.45% of adults in the U.K. smoked and in the early 2020s this had reduced to c.15%. Yet MS incidence keeps rising! Too many researchers with too much time on their hands. Need to focus on EBV, genes and gender difference. EBV is the only risk factor that can be changed via a vaccine or anti-viral. The wait goes on.
I despair at the amount of funding going into soft projects, exploring peoples views and attitudes on different topics, just reading the MS society newsletter is depressing. I think I have queried to much to be allowed onto any decision making committees now!
There wasn’t the money for snacks. 3 meals a day and sweets now and then. Spent as much time outside as possible. Walked at least a mile to school and back from 5. No opportunity to be chubby. I was a fit and sporty person until late 40s.
I see most of us identify as having been skinny - but we are a small subset of people with MS, ie educated enough to read and understand at least some of what you write and motivated enough to seek out information about improving our health. Might these characteristics indicate that we also had childhood circumstances and environments which mitigated against poor diet and obesity? I'm talking in very broad brush strokes here but I'd suggest we're not a reliable sample set from which to draw meaningful conclusions.
🙋♀️I must be the only (very) chubby child here, until mid teens when I became anorexic, and have remained on the lower end of my ideal weight throughout adulthood.
In terms of MS, the benefits intermittent fasting have been mentioned to me by a HCP. I think when talking about diet/fasting it should be pointed out that it is unsuitable for anyone with an history of an eating disorder, I rarely hear that mentioned.
No I was actually the opposite sporty super thin. I was a picky eater & IBS sufferer - my parents always tried to make sure I had fruit and veg etc x
I was obese as a child. Although looking at photos, in the 1960’s,compared to kids now, I looked less fat. I started smoking cigarettes and when I had EBV Epstein Barr Virus, then called Mononucleosis “kissing disease”. 🦠 Our life pathways are complicated. Memory not so perfect, actions not always enviable. What am I hiding? I was prescribed ozempic for type 2 diabetes. I’ve lost 70 pounds. I’ve discovered, that pre ozempic
I’m never hungry and never full. My sister told Me Mom used to say that. I attribute that to a survival technique from the ancestry:
old countries-Bohemia and Sweden. Thinking out loud.
I wasn’t fat. My BMI was normal. But I did no sports whatsoever (I was always the clumsy one). I had sweets now and then. My diet, although not “clean”, was certainly way better than standard american diet. My mom cooked every day from scratch. Occasionally we would have pizza takeaway. That was after 1996 (after the war). And during the war, well, I am glad that I was young and I don’t remember much of it
Hi Belma, always good to see you…how are you? For time being no more urological testing! Went on some med, vibegron, but it does cause retention. Went back on low dose of methanamine. Fingers crossed, getting more sleep…💕
Hello my dear friend! I have UTI every 3-4 months 😞 dr says now it’s self cathing that’s causing them. I will probably be taking low dose long term antibiotics now, after I finish round of Cefirexime. The good news is, I went to dr in Croatia, and have been approved “interstim” procedure (sacral neuromodululator, google it). It should help with frequency and retention. I’ll probably wait 6 months until the procedure, the hospitals are overworked and understaffed…
I’m sorry you’re still getting them so often. I had one per month from the constant cathing caused by the Botox, now finally worn off. Yes, my uro mentioned the stimulator. He said it does not have an electrical charge, which is good, because that wouldn’t be tolerable (I won’t bore you). I will look it up! He also talked about tibial stimulation, but said it doesn’t last. Sleep is still choppy, even though I’m definitely getting more with this new drug. Understaffing is everywhere! If you must cancel anything, get ready to wait 4+ months! 😟Always sending you good thoughts!💞
LOL, now I see that I wrote I have UTIs every 3-4 months, and I SHOULD have written every 3-4 WEEKS. Blame it on brain fog. My uro only says Oh it's due to cathing, and no other suggestions. Tibial stimulation is not available in Bosnia (come to think of it, not much is available here). I will wait for the stimulator as long as it takes. I am glad that you're getting more sleep, I am like a zombie when I don't sleep. Take care :-*
Super skinny and strong kid of a PE teacher, doing different sports 7 days a week. Also outdoors much of the free time. However, all this stopped at pretty much 18 and did become overweight later in life.
Thinking further about this Professor G, do you think it could be narrowed down to different decades. So maybe us older MSers didn’t get so many calorific UPFs. Maybe it could be linked more to the amount of these foods. They started increasing in the 70s. I’m not a scientist but I do believe they are linked to disease. So born in early 60s as a child second hand smoke was the norm. Is there research into this and diseases like MS
I was not chubby at all as a child. However, the second i hit puberty i started getting tired really easily and i noticed iwas clumsy. As a result i was excused from pe and started wondering how the hell other kids can play sports. I went from normal to gaining weight and starting to look chubby during the summer from 13-14 yo, i got my period at 14. From there on i began to not be able to sit in tge sun anymore and sunbathe. When i was 17 i started to get really obese, i was 70kg, then 76 by 18. At 16,17 i went through a period of no being able to walk to school, my legs would simply start to lock when i had about 30cm until i reached school gates. I started to zone out when i was being spoken to by teachers- it was like i couldn't hear them. I never got the joke or the banter and i was constantly tired and struggled to keep up. I'd study hard only so that the next day I'd forgotten everything or i simply coudnt find tge words. At 18 i got chest numbness. I always just thought i was stupid lol. Fast forward to 32 i started to feel concussed and failed thge Rhomberg test in tge gps office. Fast forward to 34 i had my child and all hell broke loose wghen he was 1yo witg 6 or more relapses in a year.
Tl:dr - I really don't think its childrenhood obesity that causes ms - its ms that causes child obesity.
I could have been classed as 'chubby' because I was always small for my age; 4 foot, 11.5 inches.
As a baby, I was lactose-intolerant and had to be bottle-fed.
I was active at school playing hockey and running cross-country for my school. It was only as a young adult that tapered off.
After diagnosis, I dropped a stone and paid more attention to my diet, meditation, exercise, sleep hygiene, and general wellness as one would when diagnosed with anything medical.
Xx
Underweight as a child and adolescent. Did not have mono but possibly had asymptomatic EBV infection, never been tested. I did have chicken pox as a child and again at age 35. Diagnosed with MS at age 45. Makes me wonder if that triggered the autoimmune response
I had chicken pox at 29 which was NOT fun! Mum said "We showed you to every child who had chicken pox (as you did in the 60s / 70s) and you refused to catch it! Strangely I had it first, then my 3 year old and then my 10 month old: 3 days after her first bath since 8 weeks old (thank goodness she was no longer in treatment for dislocated hips)! Between us we wrote off about 6 weeks.
I never had chickenpox but I did have measles as a child. That was before the vaccines were available for that. Possibly, also, an a-symptomatic case of EBV as well. I have not been tested for that.
I was also a slim child / adolescent. However I wonder if people who were chubby children are not posting that fact among the many comments from thin children.
Good point. My sister who had MS was a prem baby in the 50s. She was short and hated gaining weight. She wasn’t obese but rounder than myself and other skinny sister. She was bulimic and anorexic from 14-20s. This did her a lot of harm. I wondered if it set her up for disease.
I was a healthy sized, v.active child and have always eaten lots of veg. Choosing to be vegetarian from 13ish.
I can't help thinking could it be more related to what we ate as children & that obese children just ate more of a partcular thing that maybe affected likelehood of getting MS.