6 Comments
Jul 13, 2021Liked by Gavin Giovannoni

My first symptom was ON and I definitely struggle with flashing or flickering lights. I don’t know whether it’s related but I find it difficult/impossible to appreciate the Op Art of Bridget Riley! My partner loves it and took me to the Tate Modern which turned out to be a nightmare. The patterns made me feel nauseous-not sure if this is an MS thing or not?

Expand full comment
Jul 13, 2021Liked by Gavin Giovannoni

I've had five relapses, optic neuritis was the second. I have a pale optic disc as a result and definitely some sensitivity to fluorescent light ever since. Other bright lights and reflected light (eg on a window, mirror or screen) are hard to deal with too. My colour vision was fine even with the optic neuritis (as far as it could be tested - when it was bad I couldn't make out the largest letter on the eye chart so trying to pick the numbers in the colour vision test was impossible)

Expand full comment
Jul 13, 2021Liked by Gavin Giovannoni

With my last attack of ON I was very sensitive to fluorescent light for several days before there was anything noticeable with the sight, I was aware that there was something wrong on the Tuesday afternoon at the office and by the following Monday I was completely blind in the eye.

Expand full comment

Wonderful Prof GG x

Expand full comment
founding

My first symptom was vertigo and then ON. I now have something called an ocular micro tremor that makes my vision blurry and double. Does ever resolve completely?

Expand full comment

Hello Doctor- I had posed this question in the Monthly Q&A this month: One of the earliest questions I had 35 years ago when my MS career started and I had optic neuritis was, will my vision come back?. The answer, even back then, was “almost always”. I had it in both eyes for different lengths of time. But since then, 30 years ago, nothing. Sure, I have some residual effects, but that it not what I am talking about. My question, 30 years later, is what is different between the optic neuritis process, and say that for losing bladder, balance or leg control, insomuch as repeat and later exacerbations? It doesn’t seem to happen with eyes. It comes early and then stays away. How come? Is there anything worthy of investigation there? I’m sure I’m like the 10th million MSr to have noticed this and asked the question. Mouse doctor said reserve capacity of the eyes is much larger. But that doesn’t explain why I didn’t have further issues with the eyes after five years. Ant thoughts?

Expand full comment