The multiple sclerosis misdiagnosis rate is around 5% and has major implications for individuals and the treatment of MS.
Hi Prof G, great newsletter again and thank you. Would there ever be a case where on post-mortem a brain showed no MS evidence due to catching the disease very early and high efficiency DMT for example Lemtrada? Or will there always be historical signs? I was also interested in the E.P. Showing MS which MRI may not pick up - so are EP used post diagnosis at all to check disease progression and why do MRI’s not pick up everything? Thanks!
Hello Prof G. Turning this around, are there figures to show the opposite? Those who should have been diagnosed with MS, but were not.
Thank you. Eve
I had a second opinion to be on the safe side but sadly it seems a very real PPMS.
This is very important indeed.
I think it's also very important to get a second opinion/confirmed diagnosis early on.
My experience is that, the longer you have been diagnosed and 'succesful' on DMTs, the less likely a neurologist will be willing to give you a 'proper' second opinion (the reason you are 'succesful' on DMTs could very well be that you don't have MS).
The reluctance to come back on an MS-diagnosis after a long time is understandable, in a way, but it is something newly diagnosed patients do not realize. In reality, it is not something you can always have checked out later.