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Tom A's avatar

Hello Doctor- (MS since 30, now 65, Betaseron 23 yrs). Optic neuritis was one of my early issues (3-6 years in). Two times one eye, one time the other. First two episodes clear onset and remissions 6-8 weeks, but the third episode was more gradual and 6 or more months with slower onset and remittance. I too had difficulty heading down on stairs (resolved now). Didn’t have problems with coffee cups etc. Driving at night was only in familiar places as tremor and nystagmus made it difficult to see things quickly (taking time for eyes to rest on objects in order to see them clearly, which when driving- you need this kind of instantly). I suppose judging distance at night would be difficult to compare before and after MS(?) unless it were strikingly obvious. (If the item is smaller, it must be farther away).

So depth is not an issue but it takes me a extra moment or two (depending on body temp) to settle my eyes on something to examine. Highway signs on a freeway in unfamiliar places leads to missed exits. I can see the same signs better at night. It’s best to examine road trips before you depart with a good map and count streets, etc. so you are prepared. And nystagmus makes having an easygoing optometrist not in a hurry important, when testing for a new glasses prescription!

{On a side note, I would be interested someday in interacting about 1) intermittent catheterization- Is it for health reasons or convenience?; and 2) differentiating between leg problems from MS and others which might come along anyway as you age (i.e. PTTD or Peroneal Neuropathy)}

J

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fly on your screen's avatar

Hi Professor.

We can fix this, this year in a measurable way by using cheap at home EEG devices.

This is my forth time now typing this as a comment, not sure what is wrong with this site, it likes to delete my comment.

Please get in touch to at least tell me why I am wrong.

Kind regards,

Benjamin Pettit.

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