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Ian's avatar

“reduced 24-week confirmed disability worsening (CDW) by 20% compared to placebo and 30% in subjects with primary progressive MS (PPMS)”

How can an MSer interpret this? It’s the equivalent of mobile phone deals which say that for £xx a month you get 80GB of data! It doesn’t mean anything.

If this therapy is reducing disability worsening by 20%, what’s driving the disability worsening ie the mechanisms / drivers not impacted by this therapy.

Surely MSers want therapies that stop disability worsening, or at least slow it down to a level that has minimal impact during their lifetime. Are we likely to see such therapies in the not too distant future ie therapies which reduce disability worsening by 75%, 90%? Vidofludimus results appear very underwhelming.

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Roger's avatar

Yes, I would gladly do the study- but I’m 67, in the US, and they would never take me in the study. Sigh. I think Terifl does help me, as I could stagger a little farther on my daily walk when I take it (and saw a decrease when I was not taking it), but doctors don’t believe patients. Just what the sales reps tell them, unfortunately.

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