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Q&A 45 - Not to treat MS and smouldering MS

Q&A 45 - Not to treat MS and smouldering MS

Do you agree with the decision of the two British Olympians and track stars, Lina and Laviai Nielsen, not to take disease-modifying therapies for their MS? I have smouldering MS; any advice?

Gavin Giovannoni's avatar
Gavin Giovannoni
Aug 14, 2024
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Q&A 45 - Not to treat MS and smouldering MS
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Q1: Do you agree with the decision of the two British Olympians and track stars, Lina and Laviai Nielsen, not to take disease-modifying therapies for their MS?

Q2:  I am a 55-year-old man. I have had a lot of stress, and I now find myself in general decline. I think I have smouldering MS.  My balance is very poor, and I have spasms in my right arm and leg and debilitating fatigue. I presented with left-sided paralysis in 2012 and was diagnosed with relapsing-remitting MS in 2014. I have been treated with dimethyl fumarate (Tecfidera), fingolimod (Gilenya) and more recently with alemtuzumab (Lemtrada) in 2017 and 2018. Could I be prescribed a DMT on the NHS? Any advice that you could give me would be greatly appreciated.

NOTE: General substack newsletters and microsite are free; only Q&A sessions are restricted to paying subscribers. I can't run and maintain the MS-Selfie microsite, hence the need to pay people to help me do the work. If people want to ask medical questions unrelated to the Newsletters or Podcasts, they either need to become paying subscribers or email (ms-selfie@giovannoni.net) to request a complimentary subscription.

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