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Marie Kershaw's avatar

I was dismayed recently to be told in MS Clinic that MS DMT was ‘usually’ withdrawn at age mid to late 60’s. Based on what I don’t know. Every request for availability of treatment in the NHS is exhausting. Questions, questions, questions. We are left to our own research, podcasts (no complaints about this one 🤩), options and side effects of various treatments, that’s if they are even available to you. I feel I was treated very late. 7 years post first diagnosed attack (CIS until second relapse) how different my life would have been with earlier intervention.

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Helen's avatar

I’m so sad to read this. Those of us that are service uses can’t fail to see it. GPs retire before they would want to, exhausted Nurses in the surgery. I felt guilty recently when the Nurse Practitioner looked as unwell as myself, different reasons but exhausted. The system is burning HCP out. My sister is an area manager in Private nursing homes. She was recently telling me how long a patient who suffers injuries such as broken leg bones has to wait for an ambulance. Around 18. The homes have invested in a type of blow up mattress to surround the patient and it lifts them of the floor. They now have permission from NHS to put an IV up. These would be care homes as opposed to Nursing where they can do this. My sister looks exhausted from the stress. These residents become extended family. There seems little consideration on the impact on HCP. From the NHS seniority and Politicians. Then the politicians wonder why the numbers of unemployed due to stress is so high. Wes Streeting needs to put his big boy pants on and get his so called changes moving.

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