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J. Gould's avatar

I have NEVER had my walking observed by any neurologist in the past 30 years. They do a finger/nose test, observe me looking from left to right, test my hand strength & plantar reaction. I can't walk more than 800m. I tell them that. They pluck an EDSS out of the air. Some years it's 2.6 or 3, others it's 4.5. Depending on who I see. They never ask about bladder and bowel function. I think you are the Carlsberg of neurologists. If only every neurologist were as good!!!

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Laura P's avatar

My neurologist bases his EDSS score from my annual mri. I have remained at 3 since DX 10 years ago, despite having new symptoms. But convinced no new lesions means I can’t be worse.

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